“As long as I keep looking for positivity, I’m pretty sure I’ll find it. The world isn’t that terrible after all.”
After months of excruciating hardship, Renee Taylor baffles over one thousand Instagram followers with her ability to shine light on a bleak situation she certainly didn’t ask to be a part of.
In May 2018, Renee entered the hospital with complaints of massive, painful bumps on her shins and left with an unexpected Crohn’s disease diagnoses. Erythema nodosum, a symptom of Crohn’s, were the bumps that left Renee unable to walk. Within a month of the diagnoses; Renee lost twenty-five pounds– unable to eat anything without experiencing extreme digestive issues.
Crohn’s disease, a chronic inflammatory problem that primarily affects the digestive tract, isn’t all that common– only about 200,000 cases occur in the US per year.
“The hardest thing that comes from this disease is the loss of normalcy. I understand there is no true normalcy to this life that we live, but it’s simple things like not being able to work out or shower because I can’t stand on my own,” she explains. “I’m a very independent person, so losing that independence is very hard for me.”
Looking at Renee, standing 5’3 with sunshine seeping from her aura, you’d never initially know there was anything wrong. The idea that someone so seemingly healthy can be going through their own personal hell is a reality check to all who witness her daily struggle.
“I wish people knew that Crohn’s isn’t just a stomach problem. Running to the bathroom is the least of my worries when it comes to the terrible symptoms I experience. The inability to walk, mouth sores, skin rashes…the list goes on. It hurts when people try to relate by saying they have stomach issues. I know they mean well, but sometimes I just want to say ‘you don’t fully understand!'”
Renee’s treatment includes weekly injections of Humira, a TNF blocker that helps reduce inflammation and eases the debilitating pain of Crohn’s.
“When I’m not experiencing a flare-up, I live completely ‘normal.’ I can eat what I want, exercise, I don’t have to go to bed by 5 p.m…things you don’t really think about. There are times it’s hard for me to keep myself going, getting up, and walking on my own. It becomes a matter of picking and choosing what I get done that day. Sometimes I simply don’t have the strength or energy.”
Despite the daily pain Renee experiences, she continues to shine light on the silence of Crohn’s disease with her Instagram, @killinitwithcrohns, where she openly expresses her struggles and educates her following about the disease.
“You can find positivity when you’re looking for it.”
If you are searching for the epitome of something special, look no further– Renee is your girl. We could all learn a thing or two from her– and maybe we should. It’s easy to take the small things for granted when we are healthy and happy.
If you’d like to follow Renee on her journey, she’s available on Instagram @killinitwithcrohns.